WI / IL Short Slot 1
Sat Feb 22, 2020 – 7:30 pm | Domenico’s
Fraser Syndrome & Me
Directed by Kyle Anne Grendys
USA | 20 min | 2018
Filmmaker Kyle Anne Grendys, is only the 75th person to be born with the rare, recessive gene disorder called Fraser Syndrome. Having always felt alone in the world, she sets out on a journey to find her community and finally meets others just like her.
From the moment I could hold a camera, I knew I would grow up to make this film. Making “Fraser Syndrome & Me” gave me the opportunity to give to others what I needed growing up. I needed to know that I wasn’t as alone as I felt. My family needed to know that there were others out there going through the same journey. That yes, it is going to be a long and sometimes difficult road, but there is hope. After all of my traveling, I can honestly say that the individuals I met who have Fraser Syndrome are some of the best people. Everyone would enjoy hearing their stories and have the pleasure of knowing them. It is clear that these individuals have experienced a lot of hardships but they choose to be loving and kind. Parents that have endured these hardships continue to fight and believe in their child when the world does not. I started this journey feeling utterly alone. But now, I can’t believe how lucky I am to be a part of this beautiful family.
Kyle Anne Grendys
My name is Kyle Anne Grendys. I am many things, a little sister, a world traveler, dog mom, musical fanatic, a recent graduate from the University of Wisconsin – Milwaukee’s film program, oh … and I have a disability. I was born with an incredibly rare genetic disorder called Fraser Syndrome. The day I was born doctors told my parents I wouldn’t survive the night. 26 years later I am still proving them wrong. I like to say that I see the world through a view you can’t get from two eyes. I have seen the very worst the world has to offer but without seeing the bad you would never recognize the good. I dedicate my life to making films about everything good.