Sat Feb 22, 2020 – 7:30 pm | Domenico’s
Meredith is down in the dumps after getting kicked out of her band, until the ghost of Rocky Rococo shows up to help her out!
From the moment I could hold a camera, I knew I would grow up to make this film. Making “Fraser Syndrome & Me” gave me the opportunity to give to others what I needed growing up. I needed to know that I wasn’t as alone as I felt. My family needed to know that there were others out there going through the same journey. That yes, it is going to be a long and sometimes difficult road, but there is hope. After all of my traveling, I can honestly say that the individuals I met who have Fraser Syndrome are some of the best people. Everyone would enjoy hearing their stories and have the pleasure of knowing them. It is clear that these individuals have experienced a lot of hardships but they choose to be loving and kind. Parents that have endured these hardships continue to fight and believe in their child when the world does not. I started this journey feeling utterly alone. But now, I can’t believe how lucky I am to be a part of this beautiful family.